Friday 21 October 2016

How to Relax

Every time we visit our health practitioner the same question comes up; how are you sleeping?

Sleep: One of the many problems of fibromyalgia is the lack of this precious commodity.

Why precious?
I believe that a good night's sleep holds the key to many of us getting, at least a part of, our lives back.

Good quality, deep, restorative sleep is the Holy Grail. During sleep our bodies heal, tired muscles relax and our minds go over the day's events and puts them in perspective.

Poor sleep or broken sleep only puts more stress on our, already overstressed, bodies and leaves us feeling tired, stiff and sore, and in an anxious state.

There are things that we can do to improve the quality of our sleep and help us get some of the relaxation we crave.

Walking helps to release endorphins and is not too hard on our bodies. Too much, however, may just leave us with even more aches and pains as well as the, ever present, tiredness. The secret here is moderation. Short, regular walks work far better for us than longer ones. Try to keep to places where you do not have to go uphill (or downhill) as this requires more energy and puts more strain on our aching legs.

Massage Regular massages from qualified practitioners who understand fibromyalgia can be beneficial. Not all of us can tolerate full body massages but even a simple hand massage can be very relaxing. I love getting a head massage from my hairdresser but I hate having my head rubbed when having my hair shampooed! Try different things and find what works for you.

Reflexology claims to work on various areas of the body. Most babies seem to love having their feet rubbed and they usually sleep well after this so perhaps we are really all connected through our feet. I, personally, hate having my feet rubbed but far too many people find relief from reflexology and it is certainly worth trying.

Aromatherapy There are many essential oils that aid relaxation. Always buy the best quality you can afford and don't be afraid to try your own blends. These can be used for massage, in burners, as air spritzes - you can even lightly scent your pillow. The secret here, once again, is to try! Keep going until you find the oils that suit you best and the delivery methods you prefer.

Music There are many relaxing pieces of music available - sounds of nature, haunting pan pipes  - you know the sort! Personally, they drive me to distraction! I prefer to listen to my favourite music for relaxing even though it is far from the type of music usually recommended! Again, listen to what pleases you, not what someone else assumes will please you.

Gentle hugs

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Wednesday 19 October 2016

If it's not one thing ...

Well, most of the chest and back pain has gone now and the usual pain and stiffness isn't too bad so, now my hiatus hernia is playing up!

We are all used to pain all over and look forward to the occasional break from it (if we're lucky) but right now, I could really do without this.

I presume that the anti-inflammatory gel has sparked this - I haven't been able to take the tablets for years - as usual, the cure for one symptom often gives us more problems. I'll have to watch my diet for a week or two until it settles down and hopefully will avoid having to increase the Emazol.

Luckily, I have been through two oesophageal erosions and know what I have to do.
  • Relieve stress - Need to relax more
  • Avoid caffeine, tomatoes and most raw foods, alcohol and anything spicy - thankfully it's only for a few weeks! The last time it was for six months and that was a chore!
  • Sleep with my head raised up on a mountain of pillows - I still do this, just in case, as the acid reflux makes me cough and ruins my already poor attempts at sleep
  • No bending over - The last time even my voice box got badly burnt by the acid and I kept losing my voice, so not taking any chances
  • Eat small regular meals - Difficult as I don't get a chance to eat on the days I work so I'll have to work this one out
Here are my main pain triggers
  • Rushing around
  • Grabbing food on the go
  • Tomatoes, apples and anything spicy
  • Alcohol - I don't indulge much any more as it really is not worth the ill effects afterwards!
I'm open to any helpful suggestions so if you have a tip that works for you, leave a message in the comments!

Gentle hugs

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Tuesday 18 October 2016

Essential Oils for Pain Relief


Aromatherapy may have a beneficial effect on Fibromyalgia sufferers. As with all natural treatments, there is no definitive evidence either way but it can be worth a try to see if it works for you. Make sure you check with your health practitioner first as essential oils may interact with medications.

What oils should I try?
  • Lavender – Anti-inflammatory, Pain Relieving
  • Chamomile (German) – Anti-inflammatory
  • Eucalyptus – Anti-inflammatory
  • Rosemary – Anti-inflammatory, Pain Relieving
  • Wintergreen – Pain Relieving
  • Cayenne – Pain Relieving (Nerve Pain)
  • Sandalwood – Anti-inflammatory, Pain Relieving (Muscle Cramps)
  • Marjoram – Pain Relieving (Muscle Cramps)
  • Helichrysum – Anti-inflammatory, Pain Relieving (Nerve pain, Muscle Cramps)
There are many other oils that you might like to add to your blends (For relaxation, to aid sleep etc.)Do some simple research on the oil and if suitable, add it to your blend.

How do I use these oils?

Always dilute essential oils before applying to the skin. (Some can be applied direct, but unless a qualified practitioner advises otherwise, it is safer to use them in a diluted form)

An Aromatherapist will mix you a blend suitable for your own use or you can try mixing your own.

Always use a good quality carrier oil as the base - olive oil, coconut oil, jojoba oil, sweet almond oil – there are many excellent carrier oils so use whichever suits you best.

For a massage oil the dilution is usually 1 fl oz of carrier oil to 10-12 drops of your chosen essential oils.

Mix and match your blends until you find one that suits (try using smaller quantities in the same ratio so you do not waste your expensive oils)

As essential oils are quite strong do not use them on children or during pregnancy unless expert advice has been sought.

Start with simple blends and add different oils as you become familiar with them – keep to the same ratios – so that if you do have a reaction to an oil you will know which one is causing the problem and can remove it from your next batch.

Use your blended oils for all-over body massages or for rubbing on the painful area. Do not use on broken or damaged skin.

Gentle hugs

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Monday 17 October 2016

Top Fibro Fives

When I first heard the word Fibromyalgia spoken by my doctor, I thought 'Oh yeah, I've heard of that! It's that aches and pains thing.'

I went home. Googled it. And fell into a deep dark hole.

When I finally managed to escape from the hole (with help from my doctor, counsellor and friends) I decided to find out as much as I could about it - good and bad - and do something to help myself feel useful again.

There was so much information out there, at first I didn't know where to start but eventually I managed to boil it down to this. My starting point!

Here are my Top Fibro Fives - Five things we should all know so that we all have a starting point on our journey of self discovery.


Top Five Symptoms

  • Pain
  • Anxiety
  • Concentration and memory problems
  • Depression
  • Fatigue
As we are all aware there are far more symptoms but most fibro sufferers will have experienced all of these.

Top Five Helpful Natural Supplements or Creams
  • Vitamin D3
  • Fish Oils
  • Magnesium
  • Capsaicin
  • Co-enzyme Q10 
Always check with your health practitioner before taking any supplements or using any creams as, even though they are naturally occurring substances, they can interact with other medications or conditions.

Top Five Natural Treatments
  • Yoga
  • Meditation
  • Counselling
  • Acupuncture
  • Reflexology
Always check with your health practitioner first and make sure you only use qualified professionals who are familiar with our special needs.


Top Five Essential Oils
  • Lavender
  • Marjoram
  • Chamomile
  • Ginger
  • Black Pepper
Always ask for advice from a qualified professional before using any essential oils.

Top Five Foods that Help
  • Oily Fish
  • Nuts for eg, walnuts and almonds
  • Vegetables especially raw
  • Lean good quality meat and protein
  • Water
The key here seems to be to keep it simple and natural. Although not strictly food, I have included water as it is essential for every cell in our bodies.

Top Five Foods that Hurt
  • Sugar and products containing sugar
  • Products with gluten, especially made from white flour 
  • Aspartame
  • Caffeine
  • Dairy Products
As we can see, the more processed the food, the more harmful to us.

Gentle hugs

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Sunday 16 October 2016

Damn those Aches and Pains

One of the most common symptoms of fibromyalgia is the all over aches and pains. Sometimes described as flu-like, these can strike at any time and make us feel ill, tired, depressed and generally fed up with the illness.

I usually start by getting the aches in my thighs. After a little while the pains move to my arms and then, the rest of my body.

The best thing I've found that helps a little is warmth. Depending on the time of year and the actual air temperature I try one or more of the following in my attempts to gain a little relief:

  • A hot water bottle - either cuddled for the perceived comfort or applied directly to the aching area.
  • Ensure that the house or room is warm either by lighting the fire or turning on the heating - depends on the time of year and the amount of fuel available!
  • Hot drinks - I prefer coffee but many people find teas, hot chocolate or hot milk. I prefer to keep away from alcohol as, although it provides quick relief, once the 'buzz' has gone, the aches and pains seem to return worse than before.
  • Appropriate clothing - Although I feel the heat more now than I ever did, I keep a jumper handy for the times I feel under the weather.
  • A cosy blanket - to use either while sitting on the sofa or as an extra cover in bed.

It doesn't matter what method you choose, as long as it has the desired effect.

I find that the aches and pains don't last too long once I'm warm and comfortable but unfortunately, they often precede the nerve pains that are so much more difficult to bear.

I have often mentioned this and I will say it again, good quality, restorative sleep is the most important thing we can do to help alleviate some of our awful symptoms.

Gentle hugs

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Saturday 15 October 2016

Help! I Need Sleep

Feeling a bit better this morning. The anti-inflammatory gel is definitely helping. I haven't had to take any extra Ixprim as the pain is manageable - I can yawn now without gasping in pain as I do! - but I will keep on using the gel for a few more days.

Another problem I come across quite regularly is blurry eyes. This happens most when I am tired but sometimes it just comes on with no warning.

I had my eyes thoroughly checked and bought new glasses. The prescription hadn't changed much but my old glasses were so ancient and scratched that it was difficult to see through them! I thought this would make a big difference. In a way it did. I can now see properly again but when my eyes go blurry, no amount of polishing my perfect lenses makes any difference.

Sleep seems to help. Unfortunately, sleep is a thorny issue! I have little trouble falling asleep but I can't stay asleep. For the last month or so, I have been waking up five or six times a night. This means that by morning I feel tired and sometimes even shattered.

My doctor recommended a few things:
  • Keep to a regular routine - go to bed at the same time every night
  • Take the amytripteline early - I usually take it at 8.30pm so I don't have any "hangover" effect the next day.
  • Do not watch television in the bedroom as the bedroom should be for sleeping - I do not have a television in the bedroom and have never liked watching tv in bed (it reminds me too much of being in hospital!)
  • Do not eat or drink too late in the evening - I never have problems with this and consider myself lucky that I never have to get up in the night (even when I was pregnant, all those years ago!)
  • Reduce tea and coffee especially in the evenings - I can't drink tea - it makes my stomach bloat - and at home I don't drink strong coffee. I have cut down however, and I do find that this helps.
  • Do not look at the clock during the night - Actually, this made a big difference - I must remember to try this again starting tonight! - looking at the time makes us worry about the night slipping away while we're still awake and this anxiousness makes it even harder to get a good night's sleep.
When I am able to get proper sleep I notice quite a few benefits:
  • I am not so stiff in the morning.
  • My pain levels are reduced throughout the day.
  • I am better able to control my anxiety.
  • My eyes don't twitch or blur.
  • I don't feel exhausted when I wake up.
  • I am able to do things I used to take for granted - climb the stairs instead of crawling up them, brush my hair without my arms feeling like lead, take a shower and not have to lie down afterwards - I still have to be careful not to overdo it though.
  • My memory improves a little.
  • I don't feel so stressed and can think of solutions to problems rather than feeling overwhelmed by them.
Sleep is a great healer. If only we could find a way to get regular, good quality sleep, I am sure that we would feel the benefits.

Gentle hugs


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Friday 14 October 2016

Pain can be Scary

Another tough day. The anti inflammatory gel seemed to help but it was still hard to get through my work day.

As my chest and back pain was still so bad, I thought I should check with my doctor, that it wasn't anything more serious. I almost wish I hadn't.

My blood pressure was extremely high so I had to have it taken four times. Then, because I had such severe pain in my upper back (between my shoulder blades), the doctor decided to check my blood pressure on both arms.

I told her that my chest wall was sensitive to the touch and when she eventually examined me, found that it was indeed painful as I had said.

This was good news. She told me that if I didn't have this pain to the touch, she would have arranged an ambulance to take me to the nearest cardiac ward!

The reason she checked my blood pressure on both arms was because she was afraid that I might have a torn or leaking aorta! The fact that I had so much pain when she pressed on my chest (with a light pressure) made her think it might be a torn muscle instead. It was touch and go! She kept making me promise that I was telling the truth about the pain and that I hadn't felt any dizziness or sickness.

She reluctantly let me come home but I had to promise that I would contact her tomorrow if I have any other symptoms.

I still have to go back next week to get my blood pressure re-checked and if I feel sick or dizzy I have to make an emergency doctor's appointment and will be sent to hospital.

So, tonight I must rest and hopefully will feel better tomorrow.

The moral of my story is: Don't take chances. Even though we think we know what is wrong with us, it is always best to get a doctor's opinion - Just in case. There are many things that have similar symptoms, so leave it to the expert to diagnose.

Gentle Hugs


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Thursday 13 October 2016

Oops - a Tough Day

Well, I had to give in and admit defeat today. It was a quiet day at work so I don't feel too guilty but I can't believe that the pain got the better of me.

My back and chest felt a bit better after I coated my back in anti-inflammatory gel this morning. Very difficult as I couldn't reach the right spot - much too stiff to move my arms properly - but still, it helped.

The effects of the gel wore off during the day and by lunchtime I was feeling sick.  I had a shooting pain in the top of my head all day and with this and my back, I was pretty miserable.

Finally, just after lunchtime I decided to call it a day. I came home, lit the fire and rested (while working on my latest novel of course!).

Hopefully tomorrow will bring some relief. If not, I will have to go and see the doctor.

I have been reading that cool gels bring better relief than heat pads as the condition is inflammatory so I will try some cool gel tonight.

I'll keep you posted!

Gentle hugs

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Wednesday 12 October 2016

The Pain of it!

I never thought that when I wrote last night's post on Costochondritis that I would wake up with it this morning!

The worst thing about this condition is that it can hit you out of the blue and leave you feeling completely defeated.

Unable to bend, reach up or breathe properly, I still had to go to work. I waitress - part-time - and this means bending, stretching and breathing all day! By the time I finished work I felt like crying. I still had to call to my mother to cook her dinner and stay until it was time to put her to bed (a fellow Fibromyalgia sufferer).

I got home at nearly 10pm and still had to feed the pony, the cat and the dog. I sometimes wonder how I keep going.

The pain is finally easing and I hope that by tomorrow, I will feel better. I keep positive and look forward to a better day to come.

On the plus side today, the pain was so bad across my back and chest that I didn't feel the usual pain in my legs and feet!

My cat (Jinx) and I are relaxing on the sofa now but it's nearly time for bed. I can't wait!

Tomorrow is another day.

Gentle hugs

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Tuesday 11 October 2016

Costochondritis - What is it?

Costochondritis often goes hand in hand with Fibromyalgia. This condition ranges from mild to severe and affects the cartilage of the chest.

Sufferers sometimes liken the pain to that of a heart attack so it is important to know the signs and symptoms.

For more information see the following links:

Healthiculture.com

eMedicineHealth

Healthline.com

NHS UK

If you suffer from this condition, please comment and let us know if you have found anything to provide relief.

Gentle hugs

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